• Ruth's Hidradenitis links
• Hidradenitis - The Real Story - personal stories from HS sufferers.
• The HS Angel Network
  Created to provide personalized community support. Provides a monthly newsletter.
• Wikipedia entry for Hidradenitis Suppurativa
• For discussion and chat groups, see the Online Support section.
   

• eMedicine - very comprehensive summary of HS medical information
• The Doctor's Doctor Hidradenitis page - another very complete reference
• Skinsite HS page
• A Treatment Challenge (pdf) - American Family Physician
• The Merck Manual of Diagnosis and Therapy
• Dermatlas - Johns Hopkins University Dermatology Image Atlas.  Search for Hidradenitis.
• Staph may in some form or other be involved in the disease mechanism.  If you are diagnosed as a carrier of the more serious form: MRSA (Methicillin Resistant Staphylococcus Aureus), read the CDC's MRSA Fact Sheet.
• General description from the dermatology channel
   

• NORD (National Organization for Rare Disorders, Inc.)
  Please visit often to stay abreast with general "Rare Disease" issues.  Excellent website!
• ORD (Office of Rare Diseases)
  Here you can find information on more than 7,000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
• AARDA (American Autoimmune Related Diseases Association)
  Organization dedicated to bringing focus to autoimmunity through research, education and patient services.
• AAD (American Academy of Dermatology)
  The American Academy of Dermatology is the largest, most influential and most representative of all dermatologic associations. With a membership of over 13,700, it represents virtually all practicing dermatologists in the United States.
• NIAMS (National Institute of Arthritis and Musculoskeletal and Skin Diseases)
  Support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases.

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 Disability / SSA related

• Social Security Administration
  • HS is considered a disability according to the Social Security Administration.
  • How to apply for disability
• hs-usa Social Security Info Sheet
• hs-usa forum topic on disability
   

• Helpingpatients.org - application for free prescriptions from PhRMA
• Needy Meds
• The Medicine Program
• Rx Outreach
• A survival guide for the uninsured
   

• Crohns Disease
  Crohns and Collitis Foundation of America
  United Ostomy Association, Inc.
  Crohns Support Message Board on Yahoo!
   
• PCOS and Insulin Resistance
  What is PCOS (by Dr. Thatcher)
  WIKI article on IR
  PCOS Support
  Description of androgen disorders
   
• Pilonidal Cysts
  What is it?
   
• Anemia
  Anemia.com has everything you should know about anemia
   
• Depression, Anxiety, Bipolar
  Symptoms of Depression.
  Depression can be treated!
  Information from NAMI
  American Foundation for Suicide Prevention (AFSP)
  American Psychiatric Association (APA)
  Anxiety Disorders Association of America (ADAA)
  Families for Depression Awareness
  

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• Canada
  • Yahoo Online Support Group:  Hidradenitis Awareness and Research Canada (HARC)
• France
  • Maladie de Verneuil
  • Maladie de Verneuil - Information et soutien
• Germany
  • akne-inversa.de
     
• Netherlands
  • Hidradenitis Patienten Vereniging
• Oceania
  • HSAUSNZ - Group for Australia and New Zealand
     
• Portugal / Brazil
  • Hidrosadenite Supurativa Fórum (Google Grupos)
• UK
  • Support Group
  • Yahoo discussion group HS-UK
  • Community Zero HS support and discussion group
  • Scotland Yahoo group
    Or email Kirsten
    

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